Links
We have listed below a number of other organisations that we think you may find of use.
Do let us know if there are any others you would like adding to our links list which you have personally found of use, and that you think other parents, families and friends may benefit from.
Action on Pre-Eclampsia (APEC)
Helps and supports women who have had or are worried about pre-eclampsia, HELLP Syndrome and pregnancy induced hypertension (PIH).
Antenatal Results and Choices (ARC)
Information and support for parents throughout antenatal testing and when a significant abnormality is detected in the unborn baby. (Formerly called SATFA)
Baby MPS (Mailing Preference Service) online
Free site where parents can register online to stop or at least reduce baby-related mailings of samples, offers, advertisements etc.
BLISS the premature baby charity
Support, advice and information for families of babies in intensive care and special care, including bereaved families.
British Humanist Association
Has a network of accredited funeral officiants who can help to plan and conduct a nonreligious funeral ceremony.
CAREConfidential
A safe place to talk it through Free confidential help if you are facing an unplanned pregnancy or have post-abortion concerns.
Child Benefit Office
The online claim form for Child Benefit can be accessed at https://esd.dwp.gov.uk/dwp/index.jsp
Hospitals can also obtain small numbers of Child Benefit claim packs from NICO
(National Insurance Contributions Office) Stores (Tel: 0191 225 7293)
Child Bereavement Trust
Support, information and resources for bereaved families and for professionals.
The Compassionate Friends
An organisation of bereaved parents and their families offering understanding, support and encouragement to others after the death of a child or children.
Contact a Family
Support, information and resources for families whose child is ill or disabled and for parents facing a diagnosis of abnormality during pregnancy.
Cruse Bereavement Care
Support for people bereaved by death, in any way, whatever their age, nationality or belief. Help includes counselling, bereavement support groups and advice or information on practical matters.
www.crusebereavementcare.org.uk
The Cystic Fibrosis Trust
The Cystic Fibrosis Trust is the UK's only national charity dedicated to all aspects of Cystic Fibrosis.
DIPEx
Website offering a wide variety of personal experiences of health and illness using real-life interviews and including childbearing loss. Users can watch, listen to or read interviews, find reliable information on treatment choices, and look for sources of support.
Ectopic Pregnancy Trust
Support and information for people who have had or been affected by an ectopic pregnancy, including health professionals.
Federation of British Cremation Authorities (FBCA)
Organisation of cremation authorities.
Happy Hands
Source of the Babysafe inkless system for taking hand and foot prints.
www.happyhands.ws/babysafekit.htm
Infertility Network UK
Advice and support for people dealing with infertility problems and/or facing a life without children. Campaigns for greater understanding of infertility issues and timely and consistent provision of infertility care throughout the UK.
Institute of Cemetery and Crematorium Management ( ICCM)
Sets ethical professional and social standards for the management of burial, cremation and related services, and provides education and training. (Formerly the ICBA - Institute of Burial and Cremation Administration)
International Stillbirth Alliance (ISA)
International coalition of organisations dedicated to understanding the causes and prevention of stillbirth. Raises awareness, educates on recommended precautionary practices and facilitates research on stillbirth.
Jobcentre Plus
Online information about Social Fund Funeral Expenses Payments and a downloadable form.
www.jobcentreplus.gov.uk/JCP/Customers/WorkingAgeBenefits/Dev_008260.xml.html
Megan's World
Was established in May 2009 to provide assistance for plots and headstones for babies that are stillborn or die neonatally.
Miscarriage Association
Support and information for those affected by pregnancy loss (including health care professionals). Network of support groups and telephone contacts throughout the UK.
www.miscarriageassociation.org.uk
MuchLoved
is a registered charity working for bereaved people worldwide. There you can create sensitive, personalised and lasting memorial websites in memory of your loved ones. MuchLoved is very grateful to its sponsors for some very generous donations; because of these there is no charge to create or to maintain your tribute
Multiple Births Foundation (MBF)
Support and information for families with twins and higher multiple births, including support around bereavement, and information for professionals.
National Association of Funeral Directors
Advice, a code of practice and addresses for people planning a funeral or looking for a funeral director.
National Association of Memorial Masons (NAMM)
Advice and addresses for people who want a memorial stone.
Natural Death Centre
Advice for families and others on burial in a woodland or nature reserve site and on organising informal and environmentally-friendly funerals.
Now I lay me down to sleep
An American website that puts bereaved parents in touch with professional photographers who will take photographs of their babies at little or no cost. Site shows examples of photographs of babies of all gestations. Click on Find a photographer > United Kingdom for a short list of UK photographers.
Perinatal Institute for maternal and child health
Aims to reduce perinatal mortality and morbidity by distilling and disseminating the evidence for best practice in perinatal care and promoting its implementation.
Plain English Campaign
Free downloadable guides to writing clear information and other material that everyone can understand.
www.plainenglish.co.uk/guides.htm
Registry Offices for England and Wales, Scotland, and Northern Ireland
- England and Wales www.gro.gov.uk/gro/content
- Scotland www.gro-scotland.gov.uk/regscot
- Northern Ireland www.groni.gov.uk/index.htm
RELATE - National Marriage Guidance Council
Confidential counselling for couples, families or individual partners experiencing difficulties in relationships.
Royal National Institute for the Blind (RNIB)
Offers information, support and advice to people with sight problems.
Royal National Institute for Deaf People (RNID)
Offers a range of services for deaf and hard of hearing people and provides information and support on all aspects of deafness, hearing loss and tinnitus.
Samaritans
Available 24 hours a day to provide confidential emotional support for people who are experiencing feelings of distress or despair, including those which may lead to suicide. Telephone 08457 909090 for the cost of a local call. Also face-to-face support.
SHAP Working Party on World Religions in Education
For a calendar of dates of religious festivals – updated each year.
TAMBA Bereavement Support Group
For families who have lost one or more children from a multiple birth, whether antenatally, postnatally, or at any age subsequently.
(Part of the Twins and Multiple Births Association - TAMBA - www.tamba.org.uk)
TinyLife
Northern Ireland's premature and vulnerable baby charity, dedicated to reducing premature birth, illness, disability and death in babies born there. Tel: (028) 9081 5050 Fax: (028) 9081 5850
UK National Screening Committee
Antenatal screening: Leaflets in different languages (English site)
www.screening.nhs.uk/an/index.htm
Sgrinio Cyn Geni Cymru / Antenatal Screening Wales General (Welsh site)
www.screeningservices.org.uk/asw/public/about/about.asp
Screening Choices: learning resource for health professionals offering antenatal and newborn care
www.screening.nhs.uk/cpd/webfolder/web_nsc.html
Winston's Wish
Helps bereaved children and young people rebuild their lives after a family death. Offers practical support and guidance to families, professionals and anyone concerned about a grieving child.
Working Families
Campaigns for working families, information leaflets and helpline for families on lowincomes.
Research links
Research links will be coming soon.
